Websites:

Adult Congenital Heart Association.
www.achaheart.org/
The Adult Congenital Heart Association is a nonprofit organization that provides valuable information and support to adults with congenital heart defects. This site offers support group and online discussion groups.

American Heart Association.
www.americanheart.org/
The American Heart Association web site provides information on congenital heart defects in adults.

The International Society for Adult Congenital Heart Disease.
www.isaccd.org/
This web site provides information on congenital heart defects in adults.

The Canadian Adult Congenital Network.
www.cachnet.org/
This web site from the Canadian Adult Congenital Network provides information on adult congenital heart defects and has message boards.

Books:

1. Gersony WG and Rosenbaum MS. Congenital Heart Disease in the Adult. McGraw-Hill Publisher. 2002
2. You Gotta Have Heart: A Parent's Guide to Congenital Heart Defects. Crown Publishers 2001.