RESOURCE BIBLIOGRAPHYAmyotrophic Lateral Sclerosis: A Guide for Patients and Families3rd EditionHiroshi Mitsumoto, MD, Demos Medical Publishing, 2009 Publication on Overview of Amyotrophic Lateral Sclerosis: This important book covers every aspect of living with ALS, from clinical features of the disease to an overview of symptom management to understanding its diagnosis. Major sections deal with overseeing medical care and rehabilitation, living with ALS, the disease's advanced phase, end-of-life issues, and resources. Extensively revised and rewritten, this edition contains new chapters on the latest approaches to treating ALS symptoms, the use of noninvasive ventilators, multidisciplinary team care, new guidelines being developed by the American Academy of Neurology for patients with ALS, the use of riluzole (Rilutek), and more. Kitchen Table Wisdom: Stories That HealRachel Naomi Remen, Riverhead Books, 1997 Close to the Bone: Life-Threatening Illness and the Search for MeaningJean Shinoda Bolen, Touchstone Books, 1998 Necessary Losses: The Loves, Illusions, Dependencies, and Impossible Expectations That All of Us Have to Give Up in Order to GrowJudith Viorst, Ballantine Books, 1986 Share the Care: How to Organize a Group to Care for Someone Who is Seriously IllCappy Caposella, Sheila Warnock, and Sukie Miller, Fireside Books, 1995 Taking Charge: Overcoming the Challenges of Long-Term IllnessIrene Pollin and Susan K. Golant, Times Books, 1994 Mainstay: The Well-Spouse of the Chronically IllMaggie Strong, Bradford Books, 1997 |
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