Over its decades in existence, the ADRC has accumulated a rare and valuable body of resources. These include detailed clinical, neuroimaging, and genetic information; and biospecimens such as serum, CSF, and brain tissue.
Because of the importance of these resources, the ADRC has established a Resource Committee whose goal is to aid investigators in accessing and utilizing the resources and in fostering new research. Committee members include, Scott Small, Richard Mayeux, Larry Honig, Howard Andrews, Jean-Paul Vonsattel, Yaakov Stern, and Nicole Schupf.
In the case of biospecimens, however, these resources are limited. Therefore, the ADRC will create a web-based biospecimen requisition form (coming soon). Any investigator interested in utilizing biospecimens will be requested to fill out this form, and the Resource Committee will review them for approval.
In the case of data, not biospecimens, that are included in the database (i.e., clinical, neuroimaging, and genetic information) there are clearly no limits to its usage. However, given the complexity of the database and the diversity of the included information, it still would be useful for many investigators to receive advice in how best to access information most relevant to a particular research question. Accordingly, the ADRC has created a web-based resource request form, which will be reviewed by the Resource Committee. The committee member most relevant to a particular research question will contact specific investigators and offer their services.
In addition to resources available directly from the ADRC database and biospecimen resource systems, the ADRC has committed to facilitating access to resources available from two other major Columbia University projects with a focus on Alzheimer’s disease: WHICAP and EFIGA. Requests for resources from these projects are available below. Each request will be reviewed by the Resource Committee of the appropriate project.
To submit a request, please click the link to a project-specific
Resource Request form below:
ADRC Resource Request Form: Beginning in 1989, the Alzheimer’s Disease Research Center (ADRC) has recruited patients from Columbia University Medical Center, affiliated clinics, and nursing homes in the New York area. Patients receive a rigorous annual clinical evaluation and autopsies are performed on those from whom prior consent has been obtained.
WHICAP Resource Request Form: The Washington-Heights/Inwood Columbia Aging project (WHICAP) is a community-based longitudinal study, recruiting elderly subjects from Northern Manhattan. Cohorts were established in 1992, 1999 and 2009. Subjects are evaluated every two years.
EFIGA Resource Request Form: Estudio Familiar de Influencia Genetica en Alzheimer (EFIGA) is a study based on a cohort of Caribbean Hispanics with Late Onset Alzheimer’s Disease recruited from clinics in the Dominican Republic and New York.